Today we went to Grace's 5th infusion of Remicade. It was so nice to finally make the appointment at the clinic rather than needing to go to the ER or hospital before the scheduled time. She is doing very well. We fully expect remission is in effect and pain-free days are on the horizon.
She does go to bed with a nose (NG) tube that she puts in every night. (Amazing Grace again) This gives her 1000 good calories every night as she sleeps and then she can pretty much eat what she wants during the day. (Low fiber/low residue) We are all adjusting well being back home again.
I personally have found myself trying to get everything done as if my time could be short, which helps with my former friend called procrastination but that is quite tiring and I have to stop and remember I should be able to just do it tomorrow which is much more my style.
Last weekend one of Grace's sweet Cyt friends from Newton, KS came all the way to see her in one day. Lauren and the Thompsons left Saturday morning and left again that afternoon. Amazed and blessed by this sweet family's love for our girl.
Our walk for a cure is coming soon. If you can't join us, support this great organization for research on this disease we've come to know so well this year. http://online.ccfa.org/goto/teamgrace
