The LORD is good to those whose hope is in Him, to the one who seeks Him. Lamentations 3:25
After a long year seeking God and trusting Him for answers, 2014 had nothing but HOPE in it. We hope our Grace continues to feel well. We hope to stay out of the hospital. We hope we can go on a family vacation this summer. We hope...
It's almost May and Grace is now at her highest weight and feeling great! She has done very well dealing with her ostomy bag and seems to be able to eat almost anything she likes. Unfortunately, the colonoscopy from early April showed no change in her colon and stomach, even after 5 months of rest. The inflammation that shows severe Crohn's/Colitis is all over her large intestine, ileum and duodenum. While disappointed with that news we know that God never disappoints. He continues to give us hope.
Dr. Goyal, Grace's pediatric GI specialist, called today. Grace may soon be trying a medication, given by daily injection, called Humira. You may have seen the commercials on TV. It's the last big Crohn's med that she hasn't tried yet. The good thing is she will still keep the ostomy bag. She doesn't experience symptoms with it, so even she knows it's been a huge blessing! When I told her about Dr. Goyal's call today, I explained that she will probably have the bag for a while longer. She replied, "That's ok! Lots of people have it most of their lives."
Hope. It's the thing that keeps us watching for the silver lining. It's what we hold onto knowing the best is yet to come. It's full of possibility…
Oh and it's on the calendar: RoadTrip to California in JUNE! We hope...
