The coffee is not too bad.
To eat we go to another room, taking turns because she can't and we are very careful not to even talk about food.
I miss Grace's smile.
She smiled yesterday (see pic) during and after her picc line (or feeding tube in her arm) procedure (probably) because she had "worry medicine".
I miss her happy, easygoing smile.
Depending on how much less we see her go to the bathroom, determines when she can start trying chicken broth and then...nachos. :)
She is on steroids, acid reflux meds and the TBN or 800 calories of liquid food in a bag.
She might start serious meds for Crohns tomorrow or Sunday.
So we will still be here Sunday. *sigh*
I am going to be thankful that we are here at the best hospital in the nation for kids.
I'm learning there is an instant comradarie among moms of sick kids. Like a sisterhood.
I miss Moriah. I haven't seen her since Wednesday morning. Maybe today.
I'm sleeping in a land of balloons.
There are 18 helium balloons in this room, several stuffed animals and the Chronicles of Narnia in one big book!
Thankful. So thankful for all the thoughts, messages, prayers, meals, care and concern.
We are blessed and feel loved.
